Jaime Jump, DO (she/her/hers)
Disclosure(s): No relevant financial relationship(s) to disclose.
Pediatrics is a field of prognostic uncertainty and best guesses. Protocols, timelines, and past experience are used to guide evidence-based management. How do pediatric intensive care clinicians support patients, families, and team members when a patient's disease course or death does not follow the expected timeline? How do we reframe success and failure in terms of advanced care planning techniques and tangible goals? How do we integrate pediatric palliative care teams into our practice? Speakers will share perspectives on these issues when prognoses are uncertain. A framework will be proposed for discussing goals of care while preserving trust and therapeutic alliance when treatment plans go awry or end of life is near. The session will address how to support patients across spectra of neurocognitive and socioemotional development, describing when and how to adapt evidence-based psychotherapeutic interventions in an uncertain scenario. Parental challenges of coping and resilience will be explored. A renowned book author will share the story of his son’s life, how his family navigated medical ambiguity, and how telling this story not only keeps his son’s memory alive but allows other families to feel seen and cope with their daily lives.
Jaime Leigh Jump Jump, DO (she/her/hers)
Faith Kinnear, APRN
James Robinson, MD
