Not Alone in the ICU: Exploring Parental Support Needs and Perception on Peer Support Connections

Introduction: Pediatric Intensive Care Unit (PICU) admission is a major stressor for caregivers, often leading to depression and post-traumatic stress. While most interventions focus on post-discharge support, few address support interventions during PICU admission. Peer-based support from other parent caregivers remains largely unexplored. Drawing from successful peer support models in substance use and adult ICUs, this study assessed caregiver interest in peer-based support, preferred engagement methods, and availability of existing support during PICU admission.


Methods: A cross-sectional survey was conducted from January to June 2025 in the 48-bed PICU at Children’s National Hospital. The 15-question survey evaluated caregivers’ current and prior support networks and interest in peer-based support. Participants were recruited via convenience sampling. Inclusion criteria: English-speaking parents/legal guardians aged ≥18 of children admitted to the PICU for >24 hours. Informed consent was obtained. The survey was validated for face and content validity and approved by the institutional review board.


Results: Of 31/34 (91%) parents approached, enrolled, with 30 surveys completed fully or partially. Most reported support from family (94%) and friends (97%) before admission, with similar support during hospitalization (90% and 97%). Despite this, 66% expressed interest in additional PICU-based support, and 31% were open to learning more. Notably, 83% showed interest in peer-based support, with the majority (73%) preferring support from other parents, rather than solely other members of the care team. In-person support was most preferred (80%), followed by text, video calls, email and phone. Regarding timing, 61% preferred support on an as-needed basis, 13% at admission, and 10% at discharge. Overall, 55% believed such services would be beneficial, with 28% unsure but willing to try.


Conclusions: There is strong interest among PICU caregivers in structured, peer-based support during hospitalization. Even with existing informal networks, many parents desire additional support, particularly in-person. Flexibility in delivery and timing will be key. Ongoing data collection and collaboration with another institution will further inform program design and implementation of a pilot peer support program in our ICU.